Here is an update I just read from Mimi and I hope she does not mind me sharing it with you. Please say a prayer for both of them! I feel a little numb right now after reading this news so I wont be writing much tonight.
I ask again to all of you who have a few extra moments here and there to please help make and donate mini albums to kids with cancer. You can get all the info you need on my site at
What a day! Julian was a trooper as usual.We got to clinic ,got counts, got some cream on his back in preparation for the spinal tap. Walked over to third floor and waited a few minutes for Dr Murray. He came in and told Julian he was giving him some sleepy meds, he giggled and said " I love them sleepy medecines " .I dont know if you have ever had or seen someone have a spinal tap done, but you basically have to be sitting up rolled in a ball,just like for an epidural. So with Julian NOT asleep,Dr M. proceeded.Julian barely cried, like a champ.!!! After he was done ,I carried Julian to a "recovery" room where he had to lay flat on his back for an hour.his BP and oxygen levels were being watched closely. After he had been sitting there for a few,he says"When are they going to give me my sleepy medecine,i want to go to sleep" !! My little druggy!! When Dr Murray finally walked in , and took me to a different room ,I knew I was about to hear the unthinkable. Seven months only after diagnosis, 6 months only after the beginning of treatment the cancer has reccured.Cancer cells were found in the spinal fluid , wich means that somewhere,in the brain or spine,the cancer has returned. I can't even describe the feeling, fear mixed with anguish , in my guts as I walked to that room. I was told that Julian does have options , stronger chemo, bone marrow transplant...But the docs all have to discuss the best treatment plan for Julian at this point.We will be meeting Dr Murray on thursday at 9.30am to discuss our options... I felt panic actually Panic with a big P, as I was walking back to Julian's bedsite. But as I made my way back to julian , this verse came back to me "He alone is my rock and my salvation; he is my fortress, I will never be shaken" Psalm 62:2 (thank you Chris for ever mention this verse at sunday school) I didn't want Julian to see me broken and not understand what was going on and feel scared himself... Anyways...I will talk more later,tomorrow, when I can actually comprehend all this...Maybe... Mimi